Although UK specific, these sites contain lots of information that will be helpful for anyone..

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Useful Links

If you would like to suggest other sites for inclusion, please email Please Note we will only consider links that have a direct connection with Down's Syndrome or congenital heart disease.

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National Down's Syndrome Organisations in the UK

Although UK specific, these sites contain lots of information that will be helpful for anyone.

Down's Syndrome Association

Down's Syndrome Association
UK wide organisation providing information, counselling and support for people with Down's Syndrome, their families, and carers, as well as professionals.

Down's Syndrome Research Foundation Ltd

Down's Syndrome Research Foundation Ltd
UK research charity.

Down's Syndrome Scotland

Down's Syndrome Scotland
Scotland's own Down's Syndrome Association. Provides great range of literature.

Positive about Down Syndrome

Positive about Down Syndrome
If you’ve just received a diagnosis that your baby might have Down syndrome, or you have recently had a baby with Down syndrome, or if you know someone who is in this situation, this site is for you: it’s been created and written by parents who know what this is like.

The Lejeune Clinic for Children with Down’s Syndrome

The Lejeune Clinic for Children with Down’s Syndrome
Providing specialist assessment and advice to children with Down’s syndrome and their parents.

Link Categories

To make it easier to navigate, links have been broken down into categories. Please click a category to view the appropriate links.


DHG has included links to aid visitors. At the time of inclusion it was felt that these sites offered correct and useful information, but DHG has no control over the content of these sites or any changes they may undergo. Their inclusion does not in any way imply endorsement by DHG.

We are pleased to partner with Passion Digital in 2015. They will be supporting our digital marketing efforts and managing our Google Grants account. Google Grants is an in-kind scheme from Google that gives charities £6,000 of free advertising per month on the Google Adwords platform.


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