Parent friendly support and information relating to heart problems associated with Down's Syndrome.

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Tell Us Your Story

Everyone has a story to tell, whether it is about the "early days" of diagnosis and surgery, the first day at school, college, work, hobbies or how our youngsters cope with heart conditions as they get older.

Please fill in the boxes below to share your story with our readers and include photos if you like.

Contact Details

Your Name:
Your Phone Number:
Your Email Address:
Your Address:
Child's Name:

Tell Us Your Story

Tell us your story by either entering text into the large text box or send a Word or text document using the browse buttons below:

Large Text Box:
Document File:
Only Microsoft Word (.doc), or Text (.txt) files can be accepted.

Pictures (optional)

Picture 1:
Picture 2:
Only pictures in JPEG (.jpg) format can be accepted.

Submit Story

We are sorry that sending in your story does not guarantee inclusion in our newsletter and we reserve the right to edit as necessary. Please tick the boxes below to indicate your agreement to the story being used in our newsletter and if you are sending a photo please tick to confirm that you are happy for us to use it in any of our printed material and / or as part of our photo library.

We always need photos for publicity material, posters, leaflets, newsletters etc, so we ask you to give permission for us to use them for any reasonable purpose. This saves us contacting you every time and also allows us to make photos from our library available for other publications for a small donation to DHG, but we would like to reassure you that any such use will be carefully screened and no identifying information will be given out to another party without your express permission.

   I agree to my story being used in DHG Newsletters
   I agree to my photo being used by DHG in printed material and/or as part of the photo library

We were pleased to partner with Passion Digital in 2015. They will be supporting our digital marketing efforts and managing our Google Grants account. Google Grants is an in-kind scheme from Google that gives charities £6,000 of free advertising per month on the Google Adwords platform.


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    UK Charity No. 1011413

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© Down's Heart Group 1998-2019

UK Charity No 1011413    email:

This information may be reprinted, copied and distributed freely provided that the content is unaltered and the copyright and conditions are also included.
For any other use, permission must be obtained from Down's Heart Group.