List of all the items available in the Down’s Heart Group Information Pack and for online download.

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'Our child' e-learning package

Our Child first page 'An e-learning package designed to empower parents who have a child with Down's Syndrome who are facing congenital heart surgery.

It also takes parents and professionals on a journey through one family's story from diagnosis, surgery to living life to the full.

Produced by the School of Health Sciences at the University of Nottingham.


Information Sheets

The aim of this website is to provide non-medical people in the UK with good quality information about the heart conditions associated with Down’s Syndrome and other related topics. All our information publications have been written by Down's Heart Group from a parent's perspective and as well as being evidence based, ALL items of a medical nature have been checked for accuracy by professionals in the appropriate medical field.

We review Down’s Syndrome, congenital heart disease and other related websites when producing our publications, (links to many of these can be found in the ‘Links’ directory included on this website), but UK sites are the primary source of evidence as we know that there are some differences in practice and treatment in other countries. Despite this, people from outside the UK may also find Down’s Heart Group a useful resource.

As we review and update our existing publications or add new ones, we will include a list of reference sources used for each publication on Reference Sources, for your information.

This information provided on this website it to assist with understanding only and should never be used as a substitute for professional medical opinion.

    The National Institute for Cardiovascular Outcomes Research (NICOR) website provides information on surgery numbers and outcomes for units and/or cardiac conditions. It is not the most patient friendly site, but you may find it helpful to look at. NICOR

We were pleased to partner with Passion Digital in 2015. They will be supporting our digital marketing efforts and managing our Google Grants account. Google Grants is an in-kind scheme from Google that gives charities £6,000 of free advertising per month on the Google Adwords platform.


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© Down's Heart Group 1998-2019

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This information may be reprinted, copied and distributed freely provided that the content is unaltered and the copyright and conditions are also included.
For any other use, permission must be obtained from Down's Heart Group.