Information Sheets

Down's Heart Group aims to provide non-medical people in the UK with good quality information about the heart conditions associated with Down’s Syndrome and other related topics. All our information publications have been written by Down's Heart Group from a parent's perspective and as well as being evidence-based, ALL items of a medical nature have been checked for accuracy by professionals in the appropriate medical field.

We review  related websites when producing our publications, (links to many of these can be found in the ‘Links’ directory on our website), but UK sites are the primary source of evidence as we know that there are some differences in practice and treatment in other countries - (despite this, people from outside the UK may also find Down’s Heart Group a useful resource.)


This information provided is to assist with understanding only and should never be used as a substitute for a professional medical opinion.

Diagram and description of the way the heart normally works


Information relating to common heart defects associated with Down's Syndrome

Other information specifically relating to treating heart defects

Health Information


Other useful information