Parent friendly support and information relating to heart problems associated with Down's Syndrome.

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... to the website of Down's Heart Group (DHG),

a charity offering support and information relating to heart conditions associated with Down's Syndrome.

We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including:

  • one to one support
  • telephone helpline
  • newsletters

The Group aims to provide unbiased, up to date facts, thus enabling individuals to make informed choices.

If we can help you or someone you know, please contact us




The future of DHG

After a great deal of consideration looking at all aspects of the work of Down’s Heart Group, taking into account the level of usage of services and the related costs, the Trustee Board has made the unanimous decision to refocus future service provision.

There will be a more comprehensive announcement and communication with members when the finer details (currently under discussion) have been agreed, but for now we would like to reassure everyone that the DHG is not closing, just moving forward in a new way which we feel reflects the changes in families needs, largely due to the increased usage of the internet and social media. In future we will not be providing a helpline manned by paid staff, nor sending out quarterly printed newsletters and as a result DHG will no longer require paid employees to service these functions.

In the future we are looking to communicate electronically with members and to provide support by the Trustees on a voluntary basis and therefore be able to direct a much larger percentage of our income to directly supporting families.

DHG Trustees

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We were pleased to partner with Passion Digital in 2015. They will be supporting our digital marketing efforts and managing our Google Grants account. Google Grants is an in-kind scheme from Google that gives charities £6,000 of free advertising per month on the Google Adwords platform.


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    UK Charity No. 1011413

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© Down's Heart Group 1998-2018

UK Charity No 1011413    email:

This information may be reprinted, copied and distributed freely provided that the content is unaltered and the copyright and conditions are also included.
For any other use, permission must be obtained from Down's Heart Group.